Notice ID: 75N992-24-RFI-102
The Advanced Research Projects Agency for Health (ARPA-H) is a government agency which seeks to accelerate better health outcomes for everyone by supporting the development of high-impact solutions to society’s most challenging health problems. In support of its mission, ARPA-H is conducting market research for potential procurements for real world healthcare data and related services. ARPA-H has a need for real world data (RWD) both to inform strategic direction, as well as on an ad-hoc basis in support of individual mission offices and their research and development programs.
Given the fragmented nature of available data sets, ARPA-H may have analytical needs surrounding the curation and integration of data sets. The Agency seeks technologies that can be used to link records for individuals using privacy preserving record linkage techniques (PPRL) across all data sets.
Additionally, ARPA-H is exploring potential models by which integrated data sets could be made available to the broader research community, complying with relevant privacy and ethics agreements while also lowering the barriers to access for the data.
STATEMENT OF NEED
Need Area 1: Real World Healthcare Data
To fulfill the mission of ARPA-H to accelerate better health outcomes for everyone, the agency wishes to establish a repository of RWD related to the health and healthcare of the United States population including but not limited to:
- Electronic Health Records (EHR)
- Public and private payer claims
- Prescription claims
- Diagnostic testing
- Social Determinants of Health (SDOH) …
Need Area 2: Data Curation & Integration
In obtaining a significant amount of potentially disparate data, ARPA-H seeks solutions to ensure that data can be federated and integrated for maximum utility. Today, real world data is highly fragmented across healthcare providers, payers, federal agencies, data brokers and providers of healthcare related software such as Electronic Medical Records platforms …
Need Area 3: Real World Data “Public Utility”
One potential goal for the agency is to make such a federated data resource available to the research community as a “public utility”. Doing so would require the development of innovative economic models that could support the availability of data for research while enabling data providers and data brokers to see a reasonable economic return on their investment in collecting and curating data sets. The agency is seeking industry input on the potential economic models that might support such a public utility model …
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